And I mentioned two people that were quite influential on that decision. Well I think it is about time I wrote about them.
The first was a girl I knew in elementary school named Angie. She was a year older than me and her brother a year younger. We all played softball together. Our dads were the coaches for t-ball and maybe coach pitch (can't quite remember that second one). But in any case, all I knew was that these two siblings had something called Cystic Fibrosis or CF. I thought it must be pretty common if they both had. I was pretty ignorant. Or you know - only 6 years old. But I remember them both coughing a bit and being skinny. But the thing that really stuck out was when Angie came to practice with an IV in her arm. And she played. She had a PICC line in (temporary long term iv that lets them get antibiotics - and can be done at home). That is when I decided that being sick doesn't have to get in the way of life. And that a kid shouldn't have to be worried about something like that.
Angie passed away from CF complications when I was 16. I had just brought a card to school to put in the box for her, and there was no box. And there were a lot of people crying. And that's when I found out she had passed away the night before.
|Nicole and I were baking-by cracking eggs on our head.|
I went to college (different one than above -but I thought that was a brilliant college admissions essay-so unique!). A month or so into it, I walked in my dorm and my jaw dropped. There stood someone that looked so familiar. She said her name was Nicole and asked why I was in shock. I said she looked like someone I once knew. "Once knew? What happened" "She died of a disease called CF." "What??? CF, I have CF! Did she have fingers like mine?"
Ah, Nicole -so funny about her clubbed fingers. She so desperately wanted normal fingers. Nicole and I got to be good friends. She underwent a living donor lung transplant right as we graduated from college. She graduated at the top of the class. Despite missing a ton while in the hospital. She did great for awhile, and got to play her flute again and climb stairs and live on her own and have a job. But CF is a nasty disease, and she passed away 3 years later.
But as the internet would have, I finally found Angie's little brother online. And he is trying to kick some CF booty.
And one day, CF will have it's booty kicked right out of dodge.